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Instagram inspiration is sometimes what gets me out of bed in the morning

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Earlier this month I wrote this guest post on Julie Ryan’s blog, “Counting My Spoons.”  The topic of my post was Making It Work: Chronic Illness and Fashion.  In my own little way, I discussed anxiety, bras, Mr. Tim Gunn, photosensitivity, scarves, bargain shopping and more.  As a follow-up to that, here’s what fashion has been catching my eye recently.  Lots of them are screen-shots I save on my phone; I like to consult them when I’m feeling uninspired:

Having Fibromyalgia, I’ve been seeking out clothes that don’t impose painful waistbands and snug shoulder seams on my already achy muscles.  Having Lupus and its resulting photosensitivity, I have to seek out clothes that cover as much of my skin as possible.  In the beginning of the illness, I thought that just meant if I was going to the beach for the day.  Now I know I need to be covered even if I’m just going out to run errands.  And I skip the beach entirely.

By following the lovely Instagrammers @hautehijab, @hipsterhijabis and @themodestymovement, I’m starting to see that covered-up does not have to mean frumpy and unstylish.  These ladies, who dress modestly as part of their religious devotion, always look so chic.   I really admire them.  And I’ve noticed that when I try out my own version of these modest outfits, people treat you differently.  Women are friendlier.  And men are much more respectful.  Plus I’d like to think I’m setting a good example for Christopher’s almost-twelve year old daughter.

I’ve always had a thing for scarves.  If you look at my high school pictures, I’m the only one sporting some jaunty little neck scarf. I guess it was my own little trend, one that no one else felt the need to recreate.  Now I’m into long thick scarves, as you can see from the inside clothesline I made in the bedroom:


I hope you get the chance to check out my article.  Even if fashion isn’t your thing, hopefully it will illustrate my point that one little seemingly superficial hobby can be a worthwhile diversion from anxiety over your symptoms, freeing you to have a Living Incurably day.

P.S. Did you know Living Incurably is now Instagram – @LivingIncurably



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